Reflections of a Hospice Chaplain

Reflections of a Hospice Chaplain

As a hospice chaplain, Father Christian Villagomeza knows firsthand the power of spirituality and how it can affect care for hospice patients. He spiritually assists patients, primarily at LifePath Hospice, with his unique approach by way of a spiritual prescription.

Push and Pull of Empathy

hospice chaplainWhen faced with advanced illness or a terminal diagnosis, people tend to rely heavily on their religious beliefs and faith as a coping mechanism. At the same time, questioning faith can also be a focus as many grapple with the meaning of life at the end. Whether a patient follows a religion, spiritual care is of vital importance and integral to the hospice care plan.

No doubt sometimes hospice chaplains can find themselves in sticky situations among family members. “While our primary focus is often the patient or other person we are working with, we can be brought into situations where family members are at odds with one another, staff or even the patient,” said Father Christian. “We may be brought in to help defuse a volatile meeting or try and get the family on the same page.

“The reason for this often comes down to two of the most important skills we have in our toolbox: our capability of empathy and our ability to listen non-judgmentally,” continued Father Christian who enjoys sharing music with his patients.

Sympathy and empathy are often used synonymously, but they are different in experience. Sympathy could best be understood as “feeling for,” while empathy could be understood as “feeling with.”

You can have sympathy for someone’s sorrow without feeling that sorrow yourself. But if you have empathy for someone, you not only can understand someone’s sorrow but also feel some of that sorrow yourself.

A common example is grief: You can sympathize with someone in grief knowing that he or she is sad and wish to comfort the individual. But if you have lost someone yourself, you can better feel the sorrow that someone else feels when they have lost someone.

“Empathy is difficult at times because it can push us into areas of pain that make us want to fix the situation,” stated Father Christian.

As a hospice chaplain, training in the scope of practice involves identifying where one’s boundaries are in the spectrum of helping relationships. Hospice chaplains need to be aware that they can easily be drawn into situations where they become rescuers and fixers.

“Self-awareness of this dynamic is critically important to each role and development – because we are all affected by the push and pull of empathy,” added Father Christian.

Unique Approach of a Hospice Chaplain

At the Melech Hospice House in Temple Terrace, Father Christian finds that he encounters more and more patients and loved ones from different cultures. “Each brings along various religious rituals and spiritual approaches,” said Father Christian. As a spiritual care specialist, it is vital to hone one’s knowledge to be more keen and adaptive in understanding each of these cultural views.”hospice chaplain

At the time of death, face-to-face bereavement is sometimes spontaneous so a hospice chaplain learns instantly some of the rituals patients and families practice. For example, contemplation and meditation on death and impermanence are regarded as very important in Buddhism for two reasons:

  1. It is only by recognizing how precious and short life is, that people are most likely to make life meaningful and live it fully.
  2. By understanding the death process and familiarizing one’s self with it, a person can remove fear at the time of death and ensure a good rebirth.

“It is said that the aim of a Buddhist is to have no fear or regrets at the time of death because the way in which they live their lives and state of mind at death directly influences their future lives,” added Father Christian. “It is believed that people who practice Buddhism to the best of their abilities will die in a state of great bliss.”

According to Father Christian, he learned quite a lot about Buddhist belief and practice from a family member whom he was assisting with bereavement. “With Buddhism, even the mediocre practitioner will die happily and the initial practitioner will have neither fear nor dread at the time of death.”

Therefore, in Buddhist practice, one should aim at achieving at least the smallest of these results when the end comes.

At Chapters Health System, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

The Gift of Music

A couple of months ago, a beautiful gift was given to LifePath Hospice when Angela Zhu called to learn more about volunteering. “During our discussion, Angela mentioned she played the flute, among other instruments, and wondered if we could use her talents during the summer while she was in town,” said Sandy Cody, volunteer services supervisor at LifePath Hospice. “We created a schedule that allowed her to visit our hospice houses and other locations. Angela played music for more than 150 patients, as well as for attendees at one of the Circle of Love Center’s Summer Saturday events.”

Angela was so touched by her experience that she returns each month for a weekend to play for patients at one of LifePath Hospice’s locations.

In addition to patients and families appreciating her music, the following is a comment from a nurse with LifePath Hospice who listened to her play in a facility:

“Our volunteer musician turned a very heartbreakingly sad awful day into something a little magical. What a gift! She just played a lullaby … (go to sleep and goodnight) … just amazing. (I’m hiding in a tiny office crying).”

When Sandy read the visitation note from Angela about this visit, she had a sense of what her music must have meant to all those present. Here are the comments Angela then wrote:

“(The patient) woke up and smiled as I was about to leave. She opened her eyes for a second when I first started to play during my visit.”

Of her time with hospice, Angela shared, “I wish I had come sooner, because it has really been enjoyable to volunteer at the various facilities.”

LifePath Hospice wished Angela had come sooner too, but everyone is so grateful she came and returns to share her talent.

Hospice Heart: Power to Help Make the Most of Life

Hospice Heart: Power to Help Make the Most of Life

Earlier this year in our Home Runs for Hospice Hits It Out of the Park blog post, we shared a couple of the stories that moved event attendees. Today, we tell some other stories about how LifePath Hospice team members, who possess what we call a hospice heart, helped make a difference in the lives of patients and families.

Hospice Heart Moments

During the course of the last 35 years, many community members have discovered how many team members at LifePath Hospice embody the compassion necessary to guide patients and family members through the difficult journey of end-of-life care. Physicians, nurses, hospice aides, social workers, chaplains and bereavement specialists work together as a team.

During Home Runs for Hospice, speakers’ shared very personal stories about how hospice affected their lives. Even though each individual told a unique and personal tale, there was a running thread through all — the quality, compassionate care provided by a team with hospice hearts.

Heart-wrenching News

As a little girl, Colleen Schiro imagined growing up and having a beautiful wedding and a house filled with children. A year after she married the love of her life, Jeff, they became pregnant with a little girl, who they named Quinn.

“I’m sure most parents will agree that from the moment you find out you are pregnant to the day you give birth, you envision all of the wonderful things you are going to do with your child,” shared Collen during the Home Runs for Hospice breakfast program.  “Jeff and I imagined our little girl dressed up as a ballerina. Jeff talked about their father-daughter dance on her wedding day, and I couldn’t wait to teach Quinn how to play soccer and basketball.”

When Quinn was born, she was as beautiful as the Schiros imagined she would be. But just a few weeks after Quinn’s birth, Colleen knew deep in her heart something was wrong with their precious baby girl. “At two weeks old, Quinn wasn’t eating. In the weeks that followed, we were in and out of hospitals with Quinn enduring endless tests with no answers.”

By now, Quinn was three months old, and the days for the young couple were very difficult and long. Sometimes Quinn would cry for hours on end, and with each tear, Colleen’s heart broke even more. Finally at nine months old, Quinn was diagnosed with a rare and terminal genetic disorder, pontocerebellar hypoplasia.

Wonders of the Pediatric Program

“We were devastated by the news and the prognosis that Quinn wouldn’t be with us for very long,” continued Colleen. “Our hearts told us that we were going to have to live a life’s worth of experiences into a few short years. So we called hospice.”

The LifePath Hospice team, composed of experts in pediatric care, gave the young family wonderful gifts, such as no more endless hospital stays. They had Quinn’s medication delivered directly to their front door and had the peace of mind that their hospice doctor was only a phone call away.

“We fell in love with our LifePath Hospice nurse, Mary. She became a part of our family. Most importantly, the hospice team gave us the confidence and guidance to fill Quinn’s life with amazing experiences,” said Colleen.

The Schiros knew they couldn’t wait to take Quinn to Disney World when she turned 10, so the family went when she was just one year old. They needed to fill a lifetime of birthday parties into just a few short years. They wanted stories to tell, pictures to cherish and memories to hold tight in their hearts when Quinn was gone. They created Quinn’s bucket list and let the adventures begin.

hospice heartQuinn was a star on Fox 13 and met celebrities like the New York Yankees head coach, the Navy’s Blue Angels and even recording artist Rascal Flatts. She was a big fan of the Tampa Bay Lightning and even rode the Zamboni. They crossed off trips on Quinn’s bucket list: Big Cat Rescue, Busch Gardens, Strawberry Festival and the Florida Aquarium.

“Jeff and I love baseball and vowed to take her to as many games as we could. Miami, Pittsburgh, Houston and Chicago were crossed off the list. She was a cowgirl in Nashville, saw the Washington Monument in DC, met Minnie Mouse in Orlando, took a carriage ride in Charleston and rolled in the fall leaves in Maryland,” shared Colleen. “We were able to do all of this because of LifePath Hospice.”

hospice heartWith hospice hearts, LifePath Hospice was by the Schiros’ side to not only care for Quinn but also for Colleen and Jeff. The team prepared them for each one of Quinn’s trips with extra medication and supplies and direction on what to do if they needed help while they were gone.

“LifePath Hospice shared in our joys and in our tears. In December 2015, Quinn’s body was starting to shut down. The team helped us prepare, not only medically but emotionally as well. As the time was near to say goodbye to Quinn forever, it was so important that our daughter’s last few days were not spent in a sterile hospital but in our own home. There she was surrounded by the things and people she loved the most. Family came and hugged on her and friends held her hands. We lay with her in her big girl bed, rocked and hugged her and gave her kisses one last time.

“We lost Quinn in the early morning of January 10, 2016. She was only two-and-a-half years old. They say it takes a village to raise a child. I say it takes a lot of love and support from family and friends and from people who help support the mission of hospice. Without hospice, Quinn’s story would have been very different,” concluded Colleen.          

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

                                                                

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Gift of Healing

The last speaker at the Home Runs for Hospice breakfast was Gilbert Colon, who shared his experience with LifePath Hospice and the services he received as the loved one of a hospice patient.

One evening in February, Gilbert was scrolling through Facebook and saw a post from his aunt that read, “I received sad news today someone in my family has been diagnosed with cancer.” He immediately called his mom to find out who this family member was. “There was a long pause and then my mother’s tears started on the other end of the phone,” said Gilbert. “The family member was my mom. My mom was my biggest cheerleader — the one I loved the most — and she had stage IV breast cancer.”

Gilbert moved away from Tampa after high school, served in the Marines, attended college at William and Mary and then started his first job in DC: a total of 10 years all together. “But after that phone call, I knew exactly where my next move would take me ─ home to take care of my mom,” related Gilbert.” Endless phone calls, doctors’ appointments and hospital visits filled my days. My mom would get treatment, feel better for a few days and then her pain would get out of control.”

Last August, his mother’s battle with endless pain brought her back to the hospital. The doctor shared news that no one was ready to hear. There was nothing more they could do for Gilbert’s mom. She only had weeks to live, perhaps days. English was a second language for his mom so she really didn’t understand what was going on or what the doctor was saying. “I then had to do the hardest thing I’ve ever had to do. I had to translate for her. I had to tell my precious mom that she was dying. We took her home on hospice, and she died a short time later.”

Gilbert’s mom taught him many lessons in life. “She would always say work hard, think ahead and move forward,” Gilbert shared. “The only thing she didn’t teach me was how to live without her.  Guilt, sadness and anger set in and filled my days. You see I was my mom’s first-born. We had a special bond. My aunts would say she loves her children equally, but really, Gilbert, you are her favorite.”

Learning to Live Again

To help cope with the loss of his hero, Gilbert was introduced to a young adult grief support group offered by LifePath Hospice. “The first night of the group we talked about emotional guilt. I thought they were reading my mind,” confessed Gilbert. “How did they know that guilt had taken over my life? I felt guilty I had been away from home for so long and missed so many special moments with my mom.”

Gilbert thought that if he could have done more, his mom would have not died so quickly. “That night at grief group, I learned how to open up to these emotions and began to work through my feelings. I bonded with other young adults who also lost a mom or dad.  I learned that it was normal to feel loss when the one you love most is gone and it feels like a piece of you is gone, too.”

The one-on-one grief counseling helped Gilbert put the pieces of his heart back together. For months after his mother passed, Gilbert stagnated in guilt every day. “I was scared that if I worked through these feelings and accepted them, I would be moving on.”

Gilbert’s grief counselor helped him realize he had loved his mom with all his heart and her dying was not his fault. “We worked through exercises to help me realize that my mom is deep in my soul and no one can take that away.”

In his closing words, Gilbert said, “I stand here before you today a stronger man, a better friend, a more loving brother because of the support of LifePath Hospice. I am now able to honor my mom by celebrating what was most important to her in life: being there for my family and friends. I think she would be proud that I’ve worked hard, that I’m thinking ahead and moving forward.”

 

How to Help Grieving Children at School

How to Help Grieving Children at School

As summer winds down, the Florida tax-free weekend has come and gone and the streets we travel daily are about to get more congested, we realize it’s that time again — Back to School. Returning to the classroom, some children are excited to see friends they might have missed during the break. And then there are others who dread the first day and not because they fear piles of homework and academic stressors; they are grieving children who are at a loss as to how to cope with the death of a loved one or friend.

Understanding Grieving Children

There’s a saying that explains why grief can be so difficult: “As much as you love, it’s as hard to heal.” Grief is an internal process. There isn’t a cookie-cutter approach to handling grief, and invariably it will be different for different people — even within a family and no matter what the age.

After the death of a family member or friend, children are forced back into a daily routine all too quickly. “Normal life” is supposed to resume even if they are still in mourning. With educational demands, grieving children are required to move forward and often sooner than they might be ready.

grieving childrenGrief can affect every aspect of their lives. It can be difficult to:

  • Feel joy from those activities that they previously enjoyed (called anhedonia)
  • Sleep, which in turn can compromise their health
  • Remember simple tasks
  • Socialize and so they shy away from friends
  • Let themselves cry

It is totally natural to flip flop across an array of emotions. It can even be cyclical and change depending on age. Nevertheless, grieving children have a natural ability to heal their psyche.

It is important to understand that grief is a life-long process. Birthdays, anniversaries, holidays and other events can prove difficult for grieving children throughout their lives.

Be on the Look Out

According to Corinne Gaertner, a child bereavement specialist at LifePath Hospice, following a loss, temporary academic issues are common, and pre-existing issues can be magnified. Additionally, the age of the child can have an effect of the coping mechanism.

“Pre-school children often experience regressive behaviors and may be less vocal or appear anxious,” said Ms. Gaertner. “Elementary middle and high school students may have difficulty concentrating and experience decreased attendance and academic performance. Older children can exhibit high-risk behaviors, depression, social withdrawal, guilt or anxiety.”

Other issues to keep a close watch on are:

  • Difficulty in learning and remembering new concepts
  • Experiencing irritability, disruptive behavior
  • Issues sleeping

“Additionally, some children become hyper-focused on academics, and adults can miss their pain when they appear to be doing well,” added Ms. Gaertner.

Additionally, developmental milestones can impact reaction to grief years after a loss. For example, a child who lost a parent as an elementary student can develop new issues as he or she enters high school. Why? They understand the loss in a totally different way.

Tips to Help Grieving Children at School

If parents and guardians are aware of any of the described issues, they should talk with school personnel prior to the start of school. Teachers, social workers, guidance counselors and school psychologists are there to help when issues arise during the school day.

The following are some tips to help grieving children:

grieving children

  • Develop a plan to assist the child especially in providing support during emotional grief bursts
  • Make sure teachers know the child may have difficulty listening and concentrating
  • Modify, on a temporary basis, academic expectations, which would depend on the loss
  • Don’t remove all expectations as this tactic would not be in the child’s best interest
  • Establish a routine to provide a feeling of safety for the child, even if they resist them at times

Across Chapters Health System affiliates—Good Shepherd Hospice, HPH Hospice and LifePath Hospice,  all provide bereavement services to children and their families. In addition to these services, each of the hospices offers an annual weekend camp along with support groups for children and adults throughout the year. If a student is in need of services, please contact us, and let the school know we are available to help.

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Grieving Children Statistics

Every year statistics are gathered on how many children are affected by divorce but the same cannot be said about grief brought about by the death of a family member.

At the 22nd annual National Alliance for Grieving Children Symposium, Judi’s House released statistics from its Childhood Bereavement Estimation Model (CBEM). Located in Denver, the not-for-profit organization developed the CBEM tool by using population metrics to estimate the prevalence of children and youth in the United States who will experience the death of a parent or sibling by the time they reach adulthood.

According to the CBEM, one in 15 American children will experience the death of a parent or sibling before they reach the age of 18. What does this mean? There are approximately 4.8 million grieving children in the United States and the number more than doubles by age 25. Of interest to note is the fact this statistic does not take into consideration the loss of other important family members who died before the child finished high school.

In Florida, the following are the statistics for grieving children:

  • One in 14 children will experience the death of a parent or sibling by 18 years of age.
  • According to the CBEM, the Sunshine State ranks as number 25.
  • Across the state, 6.3 percent of children live in a metro area, 8.3 percent in the suburbs and the data for rural areas was not available.

Improving Sleep: Why Quality Rest is Important for Health

Improving Sleep: Why Quality Rest is Important for Health

It is hard to believe 2018 is more than half way over. Like most of us, when the New Year started, many of us made resolutions to create positive life changes that would benefit our health. We resolved to make healthy choices in what we ate, committed to 30 minutes of exercise three times a week and vowed to drink plenty of water. But honestly, how many of us made sleep a top priority for 2018? Many know sleep is important for overall health, but few create a plan to change and/or develop ways of improving sleep habits.

Why Sleep is Important for Health

Sleep plays a critical role in metabolism, memory, learning, immune function and other vital bodily functions with the connection being quite complex and not entirely understood. Some studies have shown that the quantity and quality of sleep have a profound impact on both learning and memory. Research results concluded sleep is essential for forming and consolidating memories, and it plays a central role in removing old ones and the creation of new neuronal connections.

Our immune system also can take a big hit if we don’t get adequate rest. When we sleep, our bodies regenerate and the immune system calms down. With insufficient sleep, inflammation flares up. Studies indicate that people who get less than six hours of sleep a nighthave higher blood levels of inflammatory proteins than those who get more.

When it comes to our health, stress and sleep both can affect cardiovascular health. When people get adequate sleep and can reduce levels of stress, they can in turn have better control of their blood pressure.

Tips for Improving Sleep

Lack of quality sleep can turn any person — from a patient with advanced illness to a caregiver — into Oscar the Grouch who everyone avoids. Of course, on occasion, we have all been there before: Stress, family issues or a full gamut of worries can wreak havoc on our minds causing us to lose sleep. Nevertheless, better sleep is possible.

improving sleepHere are some tips for improving sleep:

  • Make your bedroom an environment conducive to sleep (check out the sidebar for more hints).
  • Practice a relaxing bedtime ritual, such as reading a book before bed or listening to soothing, meditative music.
  • Stick to a sleep schedule.
  • Avoid alcohol, cigarettes and heavy meals in the evening.
  • If you can’t sleep, go into another room and do something relaxing until you feel tired.

Following these tips to improving sleep can help you keep tossing and turning nights to a minimum. If these tips don’t solve sleep issues for you or a loved one, please talk with your healthcare provider.

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Creating a Sleep Hygiene Habit

In the 1950s, Dr. Maxwell Maltz, a plastic surgeon, noticed a strange pattern among his patients. He discovered it would take one of his patients a minimum of 21 days to get used to seeing their new face. And thus, the statement “it takes 21 days to form a new habit” was born. With that being said, it should take someone at least 21 days to make a sleep hygiene habit stick in order to sleep well on a regular basis.

There are quite a number of tips to create an ideal sleep hygiene habit, which can make quality sleep a reality rather than a fantasy.

 

  1. Keep distractions and gadgets out of sight.

Although electronic gadgets might help make our lives easier during the day, they can put a wrench into the quality of our sleep. Try turning off all of your gadgets an hour or two before you go to sleep. When you are getting ready for bed, you need to relax and wind down your mind, not stimulate it with sending emails, watching your favorite TV program or posting on Instagram. Add to the mix the following tidbit: televisions, computers, tablets and cell phones all have a backlit function, which can disrupt your body by not producing melatonin. Instead, make it your routine to relax with a good book or listen to soothing music.

  1. Create a comfortable bed oasis.

From pillows and comforters to comfortable sheets and other various sundry bed linens, all can make a difference in the quality of our sleep. Go ahead and spritz naturally calming scents like lavender or chamomile on your pillow, or use an aromatherapy diffuser. And if you find yourself waking up in the morning with aches and pains, you might want to think about purchasing a new mattress. In addition, it is important to not forget the temperature within your bedroom. Keeping the thermostat about 5° lower than your daytime set temperature can assist in getting you counting sheep that much faster. Reason? As you drift off and visit the sandman, your body temperature naturally decreases.

  1. Make your bedroom as dark as midnight.

It is a scientific fact that your body is programmed to sleep when it is dark. Light prevents the body from producing melatonin, which is a hormonal substance that naturally promotes sleep. According to experts, light can still be detected with eyes closed through your eyelids, and the body will not secrete melatonin. Hence, keep your bedroom as dark as possible.

A good start to sleep hygiene practice is dimming the lights as you prepare to hit the sack. You can also go a step further by throwing a washcloth over the digital display of your alarm clock, or merely just turning the face away from view. But if you need a guiding light should you need to get up in the middle of the night, a bathroom nightlight would be helpful.

Heavy drapes might also work if the morning rays or street lamps shine into your bedroom, or better still another option would be a sleep mask to block out unwanted light.

  1. Keep the noise level as low as possible.

You might not be able to prevent a dog from barking or a child from crying but for the most part, you can lower the noise level in your bedroom. If you like to have some sound, try a white noise machine or play soothing melodies that shut off automatically with a timer. And if you can’t avoid the noise emanating from outside your home, there are always earplugs to dampen unwanted sound.

Honoring Veterans in the Community

Honoring Veterans in the Community

Independence Day often goes hand in hand with barbecues, basking in the sun at the beach, visiting friends and family and watching fireworks displays. The Fourth of July is also a day to reflect and remember veterans — the men and women who serve and those who gave their lives so we could enjoy our freedom. For Spring Hill residents Sherry and Richard Whitford, honoring veterans doesn’t just occur on July 4. It is actually their daily mission.

Veteran Pinning Tally

The Whitfords have been involved in nearly all aspects of the volunteer program at HPH Hospice but were particularly drawn to the We Honor Veterans program. To date, Sherry and Richard have participated in more than 4,250 We Honor Veterans pinnings since 2009. You may be wondering where the inspiration comes from being so involved with the often-moving pinning ceremonies? It springs from Richard’s service in Vietnam.

“I’m not career military, but I got involved because what I go through isn’t anywhere close to what those guys went through,” he shared. “Sherry and I do it for the patient/resident but also for the family to give them something they can keep forever.”

honoring veteransAt veteran pinnings, the Whitfords provide veterans with a personalized certificate, a We Honor Veterans pin and a star from a retired American flag. Each star includes the following message: I am part of our American flag that has flown over a home in Florida. I can no longer fly. The sun and winds have caused me to become tattered and torn. Please carry me as a reminder that you are not forgotten. 

“Families are so touched and grateful for the pinning ceremonies. During the pinnings, patients will often share short stories about what happened during their years of military service — stories their loved ones may have never heard before,” added Sherry.

Dedicated to Honoring Veterans in the Community

The Whitfords do not limit honoring veterans to only HPH Hospice patients. They also honor veterans in the community. “We feel strongly about HPH Hospice’s service to the community. By honoring veterans at various locations throughout the area, we are saying thank you to the brave men and women who have sacrificed so much so that we can be free,” explained Sherry.

At Atria Evergreen Woods in Spring Hill, Sherry and Richard demonstrated how they are honoring veterans by performing a community pinning of more than 75 residents.

For the Whitfords, it is always important for all attendees to understand the definition of what makes a person a veteran. According to Sherry, “A veteran can be someone on active duty, discharged, retired or reserved. A veteran is someone who wrote a blank check made payable to the United States of America for an amount up to and including his or her own life. We thank veterans from the bottom of our hearts for the love given for our country.”

We Honor Veterans Program

At Chapters Health System, we recognize the unique needs of America’s veterans and their families. So we joined forces with the Department of Veterans Affairs and the National Hospice and Palliative Care Organization to become a proud partner in the We Honor Veterans program at its highest designation, Level Four.

Veteran volunteers provide a unique connection to other veterans at the end of life. Veteran volunteers can provide companionship by:

  • Listening to patients as they reminisce
  • Recording their stories
  • Documenting their stories in a Legacy booklet
  • Helping connect to the Veterans History Project
  • Honoring veterans in pinning ceremonies, which provides gratitude and appreciation for time served

How to Volunteer

If you are a veteran and have a few hours a month to help support other veterans at the end of life, please consider becoming a volunteer for Chapters Health at any of our affiliates — Good Shepherd Hospice, HPH Hospice  and LifePath Hospice — in Citrus, Hardee, Hernando, Highlands, Hillsborough, Pasco and Polk counties. It’s as easy as filling out an application, just click here.

At Chapters Health System, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Veteran Pinning Among the Magnolias

Located in Lutz, Magnolia Manor Assisted Living was the recent site for the veteran pinning of LifePath Hospice patient Robert Hills. Chaplain Mathai Abraham performed the ceremony with Robert’s son, Mike, in attendance. Mike shared the following information about his father and how he became involved in the U.S. Coast Guard:

Born in 1937 in Regina, Saskatchewan, my father always had a love for adventure and the outdoors. He started Great Lakes Divers in Buffalo, New York, in 1967 and taught scuba diving, and yes, ice diving in the chilly waters of Lake Erie and the Niagara River. Shipwreck diving was his specialty and over the years, he explored many wrecks across the Great Lakes. In 1999, he and Annetta moved to Key Largo, Florida, with a house overlooking the Atlantic Ocean with daily spectacular sunsets, diving and fishing. Dad became active with U.S. Coast Guard Auxiliary Flotilla 13-8 in Islamorada and eventually was made Flotilla Commander in 2009. He was Coxswain of his 38′ Bayliner “Ocean Fox” with George Burger, Dewy Jackson, Joe Penar and Jim Murphy. My father initiated “Helo-Ops” training with Station Miami for the Flotilla, which still continues today about six times per month.

No matter the war or military action, whether Army, Navy, Marines, Air Force, Coast Guard or Merchant Marines, whether combat era or peacetime, those who pledged their service to our country are always recognized and honored at the affiliates of Chapters Health.

 

 

Retired Show Dog Moves into Pet Therapy

Retired Show Dog Moves into Pet Therapy

When human beings retire, the sky is the limit to what exciting and fun activities they tackle. But what is available for a show dog who retires at three years of age from the ring of competition? What’s next? For champion Benjamin, his human mother knew exactly what was the next step in this blue merle collie’s life — pet therapy.

Becoming a Pet Therapy Dog

pet therapyDuring his years as a show dog, the accolades had piled up for Benjamin: Canadian Champion, Grand American Champion and best in breed a number of times. Gail Currie knew Benjamin was ready and willing for a new challenge. “It started with an initial evaluation as to whether Benjamin had the temperament and attitude to be a pet therapy dog,” said Gail who happens to have a total of five other collies at home. “After he passed this first step with flying colors, Benjamin trained intensively.”

To become a pet therapy dog, Benjamin learned to leave food (and other items such as medication) on the floor, not bark excessively and not be startled or distracted by unusual noises, odors and medical equipment like wheelchairs. According to Gail, pet therapy dogs need to have a gentle personality and remain calm when strangers pet them.

The duo makes pet therapy visits at Sturgill Hospice House as well as assisted living facilities in Hernando County like Forest Oaks of Spring Hill. Gail and Benjamin also participate in many veteran events such as one sponsored by the Hernando Chamber of Commerce and the One Community Now Stand Down for veterans event in Pasco County. They also participate in “Dogs in Courtin Judge Lynn Tepper’s Family and Dependency Court on Thursdays.

When not making pet therapy visits, Gail breeds, raises, trains and shows what else — collies!  She also volunteers for the Collie Health Foundation as membership chairman. “In representing the Collie Health Foundation, I travel to the Collie Club of America’s National Dog Show as well as Sunnybank — a gathering of all collies and collie enthusiasts held in Wayne, New Jersey each August,” added Gail.

The Difference Pet Therapy Makes for Patients

pet therapyWhen they make their pet therapy visits every week, Gail witnesses first-hand how Benjamin’s presence affects patients, families and staff. “It is touching to see a patient who is living in a memory care unit recognize Benjamin as a collie. They call us over so they can pet ‘Lassie.’ Every visit is a worthwhile opportunity to make a difference.”

Both Gail and Benjamin enjoy volunteering via pet therapy and have been doing so for the past three years. “Our visits bring smiles to patients. It is so rewarding to see frowns replaced with smiles — I know we make everyone’s day brighter,” shared Gail.

Rewards of Volunteering

At Chapters Health, we believe there is no volunteer opportunity more rewarding than helping at one of our hospices. There are many ways to volunteer with Chapters Health and our affiliates and not just by making pet therapy visits. Other volunteer opportunities include patient and family support, grief support and other roles such as making phone calls to patients, copying, filing and helping with mailings.

Please consider becoming a volunteer for Chapters Health or any of our affiliatesGood Shepherd Hospice, HPH Hospice  and LifePath Hospice. It’s as easy as filling out an application, just click here. Or visit our opportunities page for more information. We’d love to have you, and as you learned from Gail and Benjamin, volunteering can be quite rewarding for both the human and furry sidekick!

At Chapters Health System, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Favorite Television and Movie Dogs

If you had to put pen to paper and create a top 10 list (think back to David Letterman and his infamous top 10 lists), what would be your favorite dogs in television and movies? The following are some of our favorites at Chapters Health.

Number 10: Hooch in “Turner and Hooch” — this classic buddy flick starred Tom Hanks as Turner and a French mastiff (Dogue de Bordeaux) really named Beasley as Hooch. There were actually a total of four dogs that played Hooch in the film. And in keeping with the legal disclaimer in most films (you know the one: no animals were harmed in the making of this film), a Hooch replica was created and used in a tragic scene toward the end of the movie.

Number 9: Scooby Doo in “Scooby Doo” — even though Scooby Doo is not an actual dog but a cartoon character, who doesn’t love this iconic Great Dane? Created by Hanna-Barbera, Scooby Doo and his human sidekick, Shaggy, were loosely based on the comedy team of Abbott and Costello.

Number 8: Frank in “Men in Black” series — although a pug on screen, Frank was also an alien in this movie starring Will Smith and Tommy Lee Jones. The real name of the dog that played this Remoolian was Mushu. And if you think the headliners were the only stars that received royal treatment, you would be wrong. Frank/Mushu had his own hotel room and dined on steak and chicken courtesy of room service.

Number 7: Buddy in the “Air Bud” movies — the star of this series of movies was a Golden Retriever capable of playing basketball on an elite level. Buddy was the actual name of this dog and also happened to play Comet, the Tanner family dog, for six seasons on “Full House.”

Number 6: Eddie in “Frasier” — after only six months of training, Moose, the Jack Russell terrier won the coveted role playing Eddie in the series named after the main character, Dr. Frasier Crane. Moose had the unique gift of being able to stare long and hard at his owner. Bestowing attention on his co-stars was another story — only liver pate or sardine oil prompted Moose to lick.

Number 5: Pete in the “Our Gang” (and later “Little Rascals”) — the original Pete in the “Our Gang” comedies was an American Pit Bull Terrier that had a natural ring around his right eye. Other dogs playing Pete (also called Petey) needed to have the ring added by a well-known make-up artist, Max Factor.

Number 4: Marley in “Marley and Me” — based on the memoir titled “Marley and Me” by John Grogan, the movie takes the audience on a journey through the life span of Marley, a yellow Labrador retriever. Obviously, the same dog could not play a puppy, adult and senior dog so the movie production actually used a total of 22 dogs to act as Marley.

Number 3: Toto in “The Wizard of Oz” — even though Toto in the movie (and the book by L. Frank Baum) was a male dog, the part was played by a female Cairn terrier named Terry. Here’s a fun fact about Terry: She was actually paid more each week for her role in the movie than any human in the role of a Munchkin…$125 per week.

Number 2: Benji in the series of “Benji” movies — in the movies, mixed breed Benji had a gift for always being at the right time in the right place. It is entirely apropos for Benji to be number two on our top ten list as he was the second dog to be nominated into the Animal Actors Hall of Fame.

And last but certainly not least, the number one dog on our favorite list would have to be Lassie, the Rough Collie, who appeared in both movies and on television. Originally based on a short story by Eric Knight about a female collie, the movies changed the gender of Lassie simply because the coat of the breed would be fuller in a male.

So which dogs are your all-time favorites? Please leave a comment below.

With the ‘End Game’ in Sight

With the ‘End Game’ in Sight

Last month the viewing public received its first glimpse of a NetFlix-produced documentary titled “End Game” in a short trailer. The 40-minute documentary, now in full release, highlights the stories of a number of individuals, how they handle their current life and contemplate death in the all-to-near future. Thus, an intense light is shed on the world of end-of-life treatment.

End Game Insight

end gameOftentimes, the discussion of hospice is a difficult and crucial conversation, and should and needs to take place long before this type of care is necessary. It’s a talk that many are not ready emotionally to have when faced with a dying parent, spouse, sibling or other family member.

As “End Game” opens with an iconic view of the San Francisco skyline, we meet the healthcare team at the University of California, San Francisco (UCSF) Medical Center. This group knows the benefits of palliative and hospice care are priceless and how to best explain the whys to patients and families.

The documentary takes on the challenge so many in hospice face: the misconception that hospice means and equals death. According to Steven Pantilat, MD, physician and distinguished professor of medicine in the Department of Medicine at UCSF Medical Center, “I think it is healthy people who think about how they want to die and sick people who think about know how they want to live.”

“Two people can have the same disease and even same circumstance. But one person takes everything in stride and the other person just can’t accommodate the illness or diagnosis,” said Zen Hospice Project’s visionary BJ Miller, MD. From his viewpoint, Dr. Miller believes when people stop holding onto the way life used to be, eyes are opened to a new understanding, and patients can then let go over suffering. “I think of suffering like a gap or a wedge. It’s a gap between the world you want and the world you have. That to me sums up suffering very nicely.”

At Zen Hospice Project, people are encouraged to not run away from life’s difficult moments and the “hard stuff.”

Sometimes the introduction of palliative care is a concept that patients and families can handle as a stepping stone to hospice. Kym Anderson, a patient featured in “End Game” shared, “Hospice has a label of … that’s it, and palliative care keeps you well as long as possible. It helps you transition to hospice. In my career in nursing for 40 years, I saw patients come into the hospital and die. That’s not how I want to do it. I want to stay home.”

Familial Disagreement

Many times when patients hear the devastating news about their disease and life expectancy, they are unable to fully grasp and understand the information. And then if you add to the mix a difference of opinion between patient and loved ones, end-of-life care can prove to be even more stressful.

There are quite a number of people who have misinformation when it comes to hospice. (Learn the truth about hospice here.) Family members fear their loved ones’ quality of life will be lessened if hospice is called in, as viewers witness in “End Game.” Additionally, they feel hospice is giving up and not fighting back to stay alive.

Hospice and palliative care can help patients make the most of life. “We help people live as well as possible for as long as possible,” Dr. Pantilat emphasized. “Doctors, nurses, social workers and chaplains work together to help the whole person with symptoms, answer questions and provide physical, psychological and spiritual support for the patient and family.

“Some patients want to be home with their families and receive good care there without any more treatment. That’s okay and a very legitimate decision,” continued Dr. Pantilat. “And there are others in such a situation who will say ‘if there’s a medicine that might make my symptoms a little better and allow me to live a few more weeks, I would like to give it a try.’”

Fear of the Unknown

end gIn “End Game,” Dr. Miller gave one of his patients an assignment: Make friends with death. “I have failed my assignment. I love to live,” confessed Thekla Hammond. In response to Thekla, Dr. Miller suggested what might work is to create a relationship with death. “Just so it is less scary than this unknown thing in the closet that we never look at, never see and never touch.” And Thekla agreed, “What is scary is the unknown and what you can’t control.”

Each patient and family dynamic situation is different. There is no right or wrong answer for end-of-life care.  Particularly insightful was a comment made by Pat Harris when she was interviewed at Zen Hospice Project, “What is important to me is to take each day at a time. Each moment is a gift. You are still here and that in and of itself is a gift.”

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

More Insight from Featured Physician

Although his name and face might be new to some, Dr. Steven Pantilat might be familiar to others who have read his book, “Life After the Diagnosis.” Within the pages of his book, he expands many of the same concepts briefly touched upon within “End Game.”

On Tuesday, July 10 at 9 a.m.LifePath Hospice kicks off the Life Reads Book Club and picked Dr. Pantilat’s book as its first selection. The event will take place at Barnes & Noble in Carrollwood located at 11802 N. Dale Mabry Highway. Created for the community, this club features books that highlight life encounters with illness and aging — especially from a caregiver’s perspective.

The discussion of “Life After the Diagnosis” will be led by Ashleigh Kirsten, RN, and Tracey Ward, both professional relations representatives with LifePath Hospice.

For more information, please contact Ashleigh at 813.394.3231.

PTSD: What You Should Know

PTSD: What You Should Know

According to Jon Karon, “In World War I, they called it shell shock. Second time around, they called it battle fatigue. After ‘Nam,’ it was post-traumatic stress disorder.”

The horrors witnessed by our military service men and women have changed with time, advances in equipment and technological capabilities. Nevertheless, war and other traumatic events transform individuals in unique, and yet similar, ways. For some, painful memories fade over time, but for others, the negative thoughts and feelings do not disappear.

What is PTSD?

In this day and age, many have heard the term post-traumatic stress disorder (PTSD) mentioned. Most often it is talked about in association with war and the mental health issues many veterans face. But what is PTSD exactly?

PTSD can actually develop months or even years after the traumatic event. If painful memories, thoughts and feelings linger for months or years and disrupt everyday life, individuals should seek a definite diagnosis and subsequent treatment.

The statistics for PTSD in 2018 are startling. Here are some of the highlights reported by the U.S. Department of Veterans Affairs’ Nation Center for PTSD and the not-for-profit organization PTSD United:

  • In the United States, approximately 70 percentof adults, or about 223 million people,  experienced some type of traumatic event at least one time in their lives.
  • It is believed up to 20 percentof these individuals will develop PTSD. This means approximately 44.7 million people are battling or have struggled with PTSD.
  • At any given time, it is estimated that 24.4 million Americans have PTSD. To put this statistic in perspective, this sum equals the total population of Texas.
  • With regard to the military, up to 30 percent of Vietnam War veterans, up to 10 percent of Gulf War veterans and approximately 20 percent of Operation Enduring Freedom and Operation Iraqi Freedom veterans have post-traumatic stress disorder. Unfortunately, the number of PTSD diagnoses keeps rising with last year alone, increasing by 50 percent.

What Are the Symptoms of PTSD?

According to American Psychiatry Association, the symptoms of PTSD fall into four categories:

  • Revisiting the traumatic experience:
    • Symptoms take the form of flashbacks, nightmares and involuntary memories.
  • Emotional distance:
    • Sufferers avoid people, activities and places that serve as traumatic reminders.
  • Extremes of emotion:
    • People with PTSD can be easily angered, feel jittery, act reckless and/or have trouble sleeping and staying focused.
  • Negative thoughts and feelings:
    • Guilt, shame, fear and lowering self-esteem tend to be a common thread in people with PTSD.

PTSD Treatment Options

When it comes to treatment options for PTSD, there are three primary goals:

  • Reduce the number of symptoms
  • Teach the person with PTSD how to cope
  • Rebuild self-esteem and self-worth

The primary method of accomplishing these goals is with cognitive behavioral therapy (CBT). Therapists are committed to helping PTSD sufferers adapt and change their way of thinking about traumatic events. For the most part, those with PTSD are encouraged to talk about the events and determine strategies to overcome and conquer the fears associated with the trauma.

PTSD and Hospice

As part of the “We Honor Veterans” program, which is a partnership between the Veterans Administration, the National Hospice and Palliative Care Organization and the hospices of Chapters Health—Good Shepherd HospiceHPH Hospice and LifePath Hospice, there is a deep understanding of the unique needs of veterans and particularly those who have a PTSD diagnosis. The partnership provides hospice staff and volunteers with the education and training necessary to serve veterans through the challenges they may face from traumatic life experiences as a result of serving in the military.

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

The Meaning behind Traditional Flag Folding

There are many names for the American flag: Old Glory; The Stars and Stripes; The Red, White, and Blue; and The Star-Spangled Banner to name a few. The original 13-star version of the flag was first unveiled on June 14, 1777, and that is why June 14 is known as Flag Day. And in case you were wondering, our current 50-star flag has flown since July 4, 1960.

At some point in time, whether in person or witnessed on television or in film, you probably saw the folding of the flag. Have you ever noticed that the honor guard pays meticulous attention to correctly folding the flag? The flag is folded exactly 13 times in remembrance of the original 13 colonies. But did you know there is a specific meaning to each fold?

Here is what each fold of the flag means:

  • The first fold symbolizes life.
  • The second fold represents a belief in eternal life.
  • The third fold is made in honor and remembrance of the veterans who gave their lives in defense of the country in order to help attain peace throughout the world.
  • The fourth fold is in recognition of the nature of the country’s citizens to trust in God.
  • The fifth fold is a tribute to the United States. According to Stephen Decatur, U. S. Naval Commander during the American Revolution and War of 1812, “Our country, in dealing with other countries, may she always be right, but it is still our country, right or wrong.”
  • The sixth fold symbolizes where people’s hearts lie in keeping with the words of our pledge of allegiance to the flag of the United States of America, and to the republic for which it stands, one nation under God, indivisible, with liberty and justice for all.
  • The seventh fold pays tribute to the armed forces. After all, through our armed forces, the United States is protected against all enemies.
  • The eighth fold is a tribute to those who died, and as Psalm 23 states, “entered into the valley of the shadow of death.”
  • The ninth fold honors womanhood.
  • The 10th fold is a tribute to fathers.
  • The 11th fold represents the lower portion of the seal of King David and King Solomon and glorifies, in Judaism, the God of Abraham, Isaac and Jacob.
  • The 12th fold represents an emblem of eternity and glorifies, in the eyes of Christians, God the Father, the Son and Holy Ghost.
  • The 13th and last fold reminds us that when the flag is completely folded, in the uppermost corned signify our national motto, “In God We Trust.”

Additionally, when the flag is completely folded and tucked in, the resulting shape appears like a tricorne hat and represents the soldiers who served under General George Washington, the sailors and marines who served under Naval Commander John Paul Jones and the many who have followed them in order to preserve the rights, privileges and freedoms we enjoy today. So in the future when you see a flag folded, you will hopefully now have a deeper understanding and appreciation of the tradition.

Suicide Loss: Help Coping Afterward with Support

Suicide Loss: Help Coping Afterward with Support

With this week’s news headlines of well-known people — fashion icon Kate Spade and world-renowned chef Anthony Bourdain — taking their own lives, it brings attention and heightened awareness to suicide prevention.  Of course, there are thousands of non-famous people who commit suicide every year leaving many loved ones struggling to pick up the pieces. So what about those who are left behind? How do they cope with suicide loss?

Coping with Suicide Loss

If individuals suffer the suicide of a loved one, they may need help processing grief. But what type of assistance would best meet their needs?  Some may have experienced a recent suicide loss and feel an immediate need for help. Others may have experienced a loss that occurred months ago or even longer but still seem to be stuck in the loss and are struggling with feelings and responses. So what is best for addressing grief? Is it individual (one-on-one) counseling or a grief support sharing group? Or both?

At Chapters Health System and its affiliates —Good Shepherd Hospice, HPH Hospice and LifePath Hospice, individual counseling and grief support groups are available for those in the community who have suffered the death of a loved one.

Ed McWilliams, a bereavement specialist with LifePath Hospice, shared the following:

suicide lossIndividual counseling with a trained bereavement counselor is normally best in the following instances:

  • The loss of a loved one occurred very recently.
  • You might still be in shock or disbelief, and you are not sure you “can hold it together” in the presence of someone outside your family or closest circle of acquaintances.
  • Your emotions may be so raw and spontaneous that meeting individually or privately with a counselor would seem safer and allow you to comfortably express your feelings.
  • You need an opportunity to experience healing at a pace or time that is tailored to your situation.

 Grief support groups are also led by trained bereavement counselors and vary in length, frequency, time of day and focus. Here are some advantages of group grief support:

  • It can be comforting to know that others can identify and empathize with your loss and how you are feeling or responding.
  • It can be helpful for you to hear and consider how others are coping and then learn from their experiences.
  • The group setting reinforces that others are indeed “walking in your shoes” in many ways and circumstances.
  • Group environments foster feelings of encouragement and support from others that may help and inspire you.

Everyone grieves differently. While people may share some commonalities in their experiences, no two are exactly alike. Consequently, respect and accept what you have in common with others and what is unique to you. No one should be told how he or she should think and feel, especially following a suicide loss. Talking with others and having people listen without judging can help healing.

It is perfectly plausible to experience an array of emotions following a suicide loss. Confusion, disorientation, fear, shame, anger and guilt are just a few emotions experienced during the grief journey.

suicide lossAfter a suicide, many people left behind feel guilt and question how the death could have been prevented. It is important for survivors to acknowledge the fact the only person truly responsible for the death was the person who took his or her own life.  Additionally, it is normal and natural for those faced with suicide loss to want to understand why the person they loved took his or her own life. Survivors might have to accept that they will never fully and truly understand why.

Memories are one of the best legacies that exist after the death of someone loved. If at first memories are dominated by thoughts of the death itself, suicide loss survivors will realize this is a normal and necessary step on the path to healing. Over time, they will be able to remember the love and the good times.

Reconciling grief will not happen quickly. Grief is a process, not a disease or an event. There are no quick fixes for what people feel. Don’t set a specific timetable for how long it should take to heal following a suicide loss.  A suicide death changes many lives forever.

If you or a loved one are having suicidal thoughts, call the Suicide Prevention Lifeline at 1-800-273-8255 (TALK). Calls are confidential and lines are open 24 hours a day, 7 days a week. For a list of additional resources, go here.

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org.

About Phoebe Ochman

Phoebe Ochman, Director of Corporate Communications for Chapters Health System, manages all content and communications for the not-for-profit organization.

Bereavement Support Group Information

All Chapters Health bereavement support groups serve to help people navigate and cope after suffering the loss of a loved one. Participants are encouraged to share feelings and responses in a safe environment with bereavement specialists who facilitate the groups.

The Suicide Loss Group at the Circle of Love Center began in January 2017 and is held on the second and fourth Tuesday nights of each month from 6 to 7:30 p.m. This support group is open to the community. The center also offers support groups for grieving children, teens and adults throughout the year. There is no charge for support groups.

For more information and to register for support groups at LifePath Hospice in Hillsborough County, please call 813.877.2200.

The Bethany Center at Good Shepherd Hospice and the HPH Hospice Center for Grieving Children offer adult grief support groups designed to provide survivors with education to help cope with their emotions, new roles in life and plans for the future. Groups are scheduled at various locations on an ongoing basis. Pre-registration is required, and groups are open to all community members who have experienced the death of a loved one, regardless of how the death occurred. In addition, children’s grief services are also available to meet the special needs of children and teens coping with the death of a loved one. Both grief centers provide age-specific services and caring support in a safe environment.

To learn more about the grief support provided by Good Shepherd Hospice to residents in Polk, Highlands and Hardee counties, please call our helpful Good Shepherd Hospice Bereavement Department at 863.968.1707.

To learn more about the grief support provided by HPH Hospice to residents in Pasco, Hernando and Citrus counties, please call our helpful HPH Hospice Bereavement Department at 727.863.7971.

 

 

Raising Alzheimer’s Disease Awareness (DRops of Wisdom)

Raising Alzheimer’s Disease Awareness (DRops of Wisdom)

Today we continue “DRops of Wisdom,” our physician blog, with Dr. Ron Schonwetter, chief medical officer for Chapters Health System. He describes the importance of raising Alzheimer’s disease and dementia awareness during the month of June.

June is Alzheimer’s Disease Month

From social to financial to health, there are many challenges that we face today as we continue to age. One of the biggest challenges doctors, patients and families face can be found in Alzheimer’s disease, dementia and memory loss.

It is estimated there are 5.7 million Americans living with Alzheimer’s and about 200,000 diagnosed with the early onset form of the disease. Two-thirds of those with Alzheimer’s disease are women in the United States. In looking at ethnicity, Hispanics are 1.5 times more likely to have the disease as compared to Caucasians of the same age, and older African Americans are almost twice as likely to have Alzheimer’s disease.

Alzheimer's diseaseWhat predisposes a person to Alzheimer’s disease or dementia? Scientists have identified age, family history and genetics as risk factors that increase the likelihood of developing Alzheimer’s disease. While these factors cannot change, studies indicate other risk factors can be altered.

Risk factors that can be altered are:

  • Cardiovascular health: High blood pressure, diabetes and high cholesterol are known conditions that can increase the risk of cardiovascular disease. The same can be said with regard to these conditions and developing Alzheimer’s. A study recently found a 45 percent increase risk of cognitive impairment or dementia in patients with coronary heart disease.
  • Physical exercise: A key strategy for combatting most diseases is regular physical exercise, and for Alzheimer’s, there is no exception. When a person exercises, there is increased brain activity, which can be beneficial in keeping brain cells healthy. Recently, Gregory Panza, an exercise physiologist in the Department of Cardiology at Hartford Hospital, and his team studied the benefits of exercise on mental function in older adults. The results of the study showed that individuals at risk for Alzheimer’s disease who did not exercise had a decline in cognition, but those seniors who did any type of exercise had better mental function.Alzheimer's disease
  • Diet: Nutrition and eating a heart-healthy diet will also protect the brain. A diet devoted to eating whole grains, fruits and vegetables, while at the same time limiting sugar and saturated fats, is the first step. In the past, the benefits of two diets had been studied: DASH (Dietary Approaches to Stop Hypertension) and Mediterranean. Rush University researchers took the data one step further and combined both diets to create the Mediterranean-DASH Intervention for Neurodegenerative Delay (MIND) diet. The results of their study showed the MIND diet lowered Alzheimer’s disease risk by as much as 53 percent for those who followed the diet rigorously.
  • Mental and intellectual activity: While once a diagnosis is made it is impossible to halt the disease, patients with Alzheimer’s are encouraged to stay as active as possible mentally. Reading, learning a new language and teasing the brain with puzzles are encouraged. It is believed constant brain stimulation keeps the unaffected part of the brain as healthy as possible for as long as possible. Published in Neurology, the Johnson group showed that mental activity had a significant impact on estimated intelligence quotient but unfortunately did not affect the course of the disease.Alzheimer's disease
  • Social interaction: When older adults have a strong social network of friends and family members, they inevitably hold conversations and think of ways to respond and interact, which helps with reasoning and comprehension. Researchers also found a strong connection between decreased cognitive function and loneliness/isolation. Therefore, it is important to encourage older adults to stay socially active by participating in community or volunteer activities.

 

When Hospice is Right for Alzheimer’s and Dementia Patients

One of the hardest decisions a healthcare practitioner will make is knowing when it’s time to refer a patient to hospice. Studies indicate that most patients who could benefit from hospice care simply aren’t referred early enough.

Any patient with Alzheimer’s disease or advanced dementia may be suitable for hospice care if the prognosis is six months or less should the disease run its natural course.

Alzheimer’s and dementia patients are eligible and can be referred to hospice when indicators, such as the following, are present:

  • Ability to speak is limited to six or fewer intelligible words per day
  • Unintentional weight loss of more than 10 percent over prior six months
  • Functional decline with the inability to walk, dress and bathe without assistance
  • Urinary and bowel incontinence

The staff at all Chapters Health hospice affiliates — Good Shepherd Hospice, HPH Hospice and LifePath Hospice, are dementia trained, so all concerned parties can be assured that we understand the disease and the specific challenges that come with caring for Alzheimer’s disease and dementia patients. Symptom management is of utmost importance, and we can assist with the following to help a patient’s quality of life:

  • Anxiety or agitation
  • Pain
  • Difficulty swallowing
  • Depression

In addition, we assess each patient’s safety on every visit to minimize fall risk. And whenever possible, we also schedule our care visits in the day to calm patients and support caregivers with the challenges often associated with Sundowning Syndrome or late-day confusion.

If you know someone with Alzheimer’s who could use supportive care in the comfort of his or her home, contact us at 1.866.204.8611.

What Would You Like to Read About in Future Posts?

In “DRops of Wisdom,” we want to feature posts with subject matter that interests you. Please leave a comment or email us with your ideas.

At Chapters Health System and its affiliatesGood Shepherd Hospice, HPH Hospice and LifePath Hospice, every day is devoted to educating our patients and keeping them in the place they call home. We are dedicated to ensuring that patients, young and old alike, and their families are able to make educated decisions about important healthcare matters. For more information, please call our helpful Chapters Health team at 1.866.204.8611 or send an email to info@chaptershealth.org

 

About Dr. Ronald SchonwetterSchonwetter-Ronald

Dr. Ronald Schonwetter, Chief Medical Officer for Chapters Health System, manages hospice and palliative care services for the not-for-profit organization.

Stats on Alzheimer’s Disease and Memory Loss

According to the Alzheimer’s Association, the following are some startling statistics when it comes to memory loss diseases:

  • Currently, 5.7 million Americans live with Alzheimer’s disease.Alzheimer's disease
  • One in three seniors dies with Alzheimer’s disease or dementia.
  • Alzheimer’s disease is the sixth-leading cause of death in the United States.
  • Every 65 seconds in the United States, someone is diagnosed with Alzheimer’s disease.
  • Between 2000 and 2015, deaths from heart disease decreased by 11 percent while deaths from Alzheimer’s increased by 123 percent.
  • Among the top 10 causes of death in the United States, Alzheimer’s is the only one that cannot be prevented or cured.
  • By 2050, the number of people in the United States with Alzheimer’s could be as high as 14 million, with the disease being diagnosed at a rate of every 33 seconds.Alzheimer's disease